Resources

One of the first things most parents do upon hearing the news that their child has cancer is search for help and resources. We believe that finding and gaining support from DIPG (or Diffuse Intrinsic Pontine Glioma) community groups and foundations were critical in keeping our family focused and strong. This is why we know Gabriella was— and will always be— #StrongerThanDIPG, and so are we. Though we are not directly affiliated with the organizations listed below, we hope that you find them to be as helpful and supportive to you as they were to our family. 

Please keep in mind that many organizations will require an application, or have certain necessary criteria in order to qualify for aid. This is a great opportunity to ask those close to your family to assist in finding and contacting organizations that can provide support or financial assistance. 

Since June 2020, we are proud members of the Coalition Against Childhood Cancer. Visit their website and the Hope Portal for family support here.

Since June 2020, we are proud members of the Coalition Against Childhood Cancer. Visit their website and the Hope Portal for family support here.

Organizations Offering Information, Support, & Financial Assistance

  • 4AydenStrong Foundation - Support and financial assistance

  • Brooke Healey Foundation - Awards, scholarships, and monetary donations to families in need  

  • Clayton Dabney Foundation - Support through wishes, gifts, special events, family travel, and financial assistance for household expenses for cancer or cancer related illness for children 18 and younger

  • Cory's Crusaders - Research and financial assistance for pediatric brain cancer families

  • The Friends4Michael Foundation - Financial assistance for pediatric brain cancer families

  • Get Well Gabby Foundation - Hope Portal offers a robust list of organizations around the country providing assistance to children with cancer and their families

  • Hogs For the Cause - Financial assistance for pediatric brain cancer families, Bereavement Assistance

  • Kisses for Kyle - Financial assistance, gift cards, gift certificates, gas cards for pediatric cancer families

  • Leukemia Texas- Leukemia Texas is dedicated to improving the lives of fellow Texans with leukemia, through the funding of life-saving research & patient aid.

  • Live Like Bella - Financial support and family assistance with medical co-pays, basic needs such as gas, food, utilities, memorial support, and research for pediatric cancer families

  • Keris Kares - Spiritual, emotional, and financial support through the Butterfly Fund at certain medical facilities

  • Marc Jr's Foundation - Financial assistance

  • One At A Time- Every month, we select a few children from each region of the United States to participate in our campaigns program, where we host a fundraiser to help fulfill one of their biggest dreams. We tell the child's story via our website and social media channels, and work directly with local businesses and media outlets to help spread awareness on what the child and their family are going through.

  • Pennies from Heaven, Caleb's Foundation - Financial assistance for rent or mortgage payments, electric or medical bills, groceries, transportation, and more

  • Smiles for Sophie Forever - Our Foundation is dedicated to honoring Sophie’s memory by providing financial support to those families burdened by pediatric brain tumors through the "Smiles For Sophie Forever Endowment Fund” at University Hospitals Rainbow Babies & Children’s Hospital of Cleveland.

  • Reflections of Grace - Financial assistance twice during a given 12-month period, Bereavement assistance

  • Team Daniella's Childhood Cancer Foundation - Financial assistance for families 

  • Tyler Robinson Foundation - Financial assistance through grants for families faced with pediatric cancer aged 18 or younger, and who are struggling to make ends meet (Note: TRF requests grant applications from our partner hospitals; currently, the TRF does not accept unsolicited requests)

Get 1 on 1 support from oncology nurses sponsored by the Chadtough Defeat DIPG Foundation

DIPG-Focused Organizations & Support

Note: For international DIPG organizations, please visit our International Child Cancer Support Resources section below

  • My DIPG Navigator- Get one-on-one support from a DIPG/DMG Nurse Navigator. With years of experience in pediatric oncology, nurses will directly help you better understand the diagnosis and treatment options, connect you to the proper resources you need, and support you any time throughout your family’s entire DIPG/DMG journey.

  • Julianna Sayler Foundation - Financial assistance in the form of a $500.00 USD grant given to a families with children diagnosed with DIPG brain cancer. Grants can be used for purposes that benefit the child, including treatment travel expenses, medical expenses, lodging, airfare, food, gas, and more

  • Michael Mosier Defeat DIPG Foundation - Research and tribute funds for children

  • Aiden’s Light- Their MISSION is to raise awareness about Diffuse Intrinsic Pontine Glioma (DIPG), raise money for research into a cure for DIPG and other childhood cancers, and to support families financially and spiritually who are directly affected by DIPG and/or other childhood cancers. Contact them for assistance.

  • PB&J Spreading Love- Provide help families of children that have been diagnosed specifically with DIPG or children that have been put into hospice or palliative end of life care with less than 6 months to live. Contact them directly for assistance here.

  • Team Buddy Forever Foundation- Their mission is to fund awareness of Pediatric Brain Cancers while assisting families of children diagnosed with DIPG the necessary financial support, and networking resources for treatment options during this traumatic period. Application for assistance can be found on their website.

DIPG Facebook Groups

  • DIPG Treatment Advisory Council- A centre of brain cancer therapy guidance for parents and kids with a newly diagnosed DIPG. Strong medical advisory board + experienced DIPG advisors.

  • Diffuse Intrinsic Pontine Glioma: DIPG/Brain tumor/Cancer Families- Members are admitted very selectively, as we wish to keep this group tightly focused on the needs of those who are closely impacted by DIPG.

  • DIPG (Diffuse Intrinsic Pontine Glioma) Awareness for Family and Friends- For Families and Friends of the family looking for DIPG supprt.

  • DIPG talk- A place for those with experience of DIPG, to help those who need guidance for their family member with this type of cancer.

  • DIPG Research- DIPG Research is Not a Support Group but more for information purposes. This is a Medical Group Only.

  • DIPG Support and Awareness- A place for DIPG families, friends and supporters to come together. Support and awareness for DIPG. Daily posts, updates and stories on DIPG and children and adults with DIPG.

  • DIPG Parents Only Sanctuary- This is a Private Group just for Parents of DIPG Children. All parents welcome.

  • DIPG Warrior- DIPG Warrior is The Cure Starts Now’s way to support your family and friends through awareness, support, fundraising and more than anything, honoring your DIPG Warrior.

  • DIPG Dads- This is a group for fathers that have or had a child with DIPG. It’s a judgement free place to ask questions about anything from DIPG, emotions, spouse issues, or stress and to when to let out the emotions.


Pediatric Cancer Patient & Family Support

Pediatric Cancer Patient Resources by State

California

  • N8 Foundation - Research and financial assistance for California families

Florida (FL)

Georgia/ South Carolina

New Jersey (NJ)

  • ForeverLoganStrong - Financial assistance and support in the New Jersey area

  • Frances Foundation - The Foundation strives to alleviate a child’s pain and suffering with a special gift, a special gesture, or even a few special moments. The Foundation also provides financial assistance to impoverished families desperately needing help due to their child’s fight against cancer.

  • Mya Lin Terry Foundation - The Mya Lin Terry Foundation is pleased to accept applications for monetary grants from pediatric cancer patients living in New Jersey.  

Pennsylvania (PA)

Texas (TX)

  • Heroes for Children - Texas families may receive direct and immediate financial assistance for everyday expenses. Case workers refer qualified applicants to our organization, and checks are typically processed within seven days. An average of $750 per request is donated directly to families.

  • Hayes Tough Foundation - Focuses on families and children fighting childhood cancer throughout the United States.

  • Chance for Hope Foundation- Our mission is to provide support services for children with cancer and their families, funding for pediatric cancer research and treatment, and educational resources to the general public regarding pediatric cancer.

  • BIG Love Cancer Care- Providing personalized care to cancer kids and their families at Texas Children's Hospital (Houston) and Dell Children's Medical Center (Austin, TX).

  • Hope Hits Harder Foundation- Foundation dedicated to improving the quality of life for children diagnosed with cancer. They offer in hospital assistance, family outings, gift cards and emergency assistance as well as partner with local organizations to support families in the community of San Antonio.

  • Jaxon FROG Foundation- Their mission is to serve as the hands and feet of Jesus to bring smiles to children battling cancer, support ongoing research to find a cure for our young heroes, and be a light in the darkness to encourage the impacted families to Fully Rely On God. They offer programs such as escape to fun to give children with cancer and kids on hospice care a positive outlet to just be kids and hope for hospice bags bag for a hospice child with a stuffed animal, Captured on Canvas materials, and a CD with uplifting music. Contact them directly if your child is in need of these services.

  • Stay Strong Foundation- Dedicated to serving children and their families who are battling all types of pediatric cancer and other life-threatening pediatric illnesses.

International Child Cancer Support Resources